Ensuring patients with cardiac devices have the same access to MRI scanning as everyone else.
Our mission is to ensure that patients with cardiac devices have the same access to MRI scanning as everyone else.
“You have the right to receive care and treatment that is appropriate to you”
“You have the right to expect your NHS to assess and to put in place the services to
meet those needs as considered necessary”
– The NHS Constitution
We are now testing a dedicated cloud-based referrals platform that uses intelligent logic to simplify service complexity, and enable quicker access to better care.
Hospitals do not provide MRI services because it is logistically challenging – it needs experts in both MRI and the heart to work together, who do not normally. It is resource intensive to prevent rare but serious complications, and hospitals lack confidence because of the level of technical knowledge required.
Traditionally referrals are made linearly but require simultaneous coordination between multiple individuals, many emails and delays of months.
Because the digital infrastructure is designed directly by the end clinical users, the intelligent logic can manage complex decisions with the necessary safety assurance that usually takes multiple clinicians many weeks.
The British Heart Foundation is supporting deployment initially at Barts Health NHS Trust, the fourth largest NHS Trust in the country. This will then be deployed and refined at five other pilot sites before being made available to the rest of the country.
If you are a clinician and want to set up a service, or save time to scale MRI volume – get in touch.
We are please to announce that now 60 centres in the UK have registered as part of our referrals network.
Every few weeks, MRI My Pacemaker links patients with MRI centres either in the UK or USA. We do our best to support all patients because these are often for suspected cancer diagnosis and therapy or to investigate neurological disorders.
We encourage all centres to register their services here, to ensure patients are not unnecessarily denied access to MRI scans.
Updating information and guidance.
We find we are often contacted by patients looking for MRI services (both in the UK and abroad). We have decided to develop educational videos and leaflets using an award-winning developer to raise referrer awareness. Because patients are their own best advocate, we hope this will empower patients to initiate contact with MRI services and share their records online.
How do we ensure that we can update every one of half a million people in the UK with cardiac devices? We will make the leaflet available in physiology clinics which patients attend at least annually for a device check.
We are spending a lot of time getting the content right due to the complexity of the topic – it requires imaging and heart specialists and of course patients. We are grateful to the following for their input:
The National Device-MRI Working Group and the following national societies are ensuring the content and advice is accurate:
- Royal College of Radiologists
- British Cardiovascular Society
- British Heart Rhythm Society
- Institute of Physics and Engineering in Medicine
- Medicines and Healthcare Products Regulatory Agency
- The Society of Radiographers
Addendum Unfortunately covid-19 will likely mean that we will rely more on remote device monitoring rather than in-person checks. We will still make sure leaflets are distributed to patients at the time of implant (working with the British Heart Rhythm Society) and through patient charities.
We are pleased to announce support from the British Heart Foundation for the MRI My Pacemaker campaign! It is one of four projects receiving innovation seed funding from a joint partnership with Novartis, to transform the way millions of people are affected by heart disease.
The resources will be used to work with national societies, patient charities and industry to improve education and develop an intelligent cloud-based referrals platform so cardiac device patients across the UK can access cancer and stroke care reliant on MRI, just like the rest of us.
We will develop patient leaflets available in every UK cardiac device centre, and educational videos so patients and referrers feel empowered advocating for important MRI scans when required.
Because the digital infrastructure is designed directly by the end clinical users, its intelligent logic can manage complex decisions with the necessary safety assurance that can otherwise take the imaging and cardiac specialists many weeks. We hope this will expedite treatment, improve safety and reduce administration.
We are indebted to the many individuals, and partners that are working with us on this project.